The doctors ignored my breath difficulties, but it was an eosinophilic esophagitis (EEO)

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May 22, 2025 is the EEO day of the first world.

Three years ago, my son was diagnosed with a disturbance that caused a lot of stress and changes in our family’s lifestyle. A year and a half later I started to experience a feeling of burning and oppression in my chest, which always happened, but how many mothers concentrated on my son and ignored my symptoms. The feeling was different from acid and seemed to be muscle inflammation through combustion. But I didn’t bother myself all the time, so I didn’t get myself to examine myself.

Summer came and suddenly had problems swallowing and breathing at the same time. I thought that the panic I experienced because I couldn’t swallow, caused my breathing problems or that I might have developed a new allergy. I remember that my son’s doctor told me that I should take care of myself, but I didn’t really know what he meant. It minimized the stress I had, and spoke to anyone about it or took care of my body. Instead, I tried to do everything right as a mother, and ignored warning signs that pointed out that something was wrong.

After all, I had advice with an allergist who found that he had an allergy to the mold, and assumed that it was very sensitive and that my other symptoms had a relationship with this allergy. But the symptoms continued, so I finally had advice with my header, which had a disappointing attitude. I told him there were times when I suffocated and I had problems swallowing and breathing. I asked if my mold could be the cause. “The shape can’t do that,” he told me, but he gave me no other explanation. My instinct told me that something was very bad, but when he said it, I thought I would have imagined everything, maybe it was panic or fear. I was completely discouraged.

My symptoms temporarily continued in autumn and near the celebration of the Thanksgiving Festival. Not only had food problems. Now I had problems in general and the feeling that there was something in my throat. The burning of my breast and breast problems occurred much more often. The symptoms seemed to be worse than he lay, raised things or undertook physical exertion.

In January I had a consultation with a stomach -intestine doctor (gastroenterologist) who spent a lot of time with me and recommended that I immediately submit to endoscopy. I was very lucky to listen and didn’t have to take any other steps to carry out the test. At that time I was diagnosed with classic eosinophilic esophagitis (EEO), a chronic disorder caused by inflammation in the esophagus, and it was found that my acid reflux was very serious.

I was angry and worried. Try not to make internet consultations, but what I have read confirmed that the EEO is a chronic disorder that should always be controlled. It was changed. I didn’t have to control anything else in my life. I also learned that there are several reasons why you can develop EEO. I always believed that there is an explanation for everything that happens in your body. If you can identify it, you can heal yourself, but after crossing the whole process with my son, I was exhausted and just thought that I had to do it for myself again.

Ironically, the Eee was particularly understandable because the son of a close friend, Jerich, diagnosed this disorder at the age of 8. He knew the long process that his family had to cross to understand what caused the disease and to learn to control their symptoms. His mother, Heather and I had been friends since they got married, and our children grew together, so I was with her when she checked her symptoms and during the diagnostic process. It was difficult for a little child to submit all of these invasive tests and I saw how difficult it was. But after seeing Jerich, I had the same difficulties I had at the time, comforted me. If a small child can endure it, I can certainly do it too.

At the moment I am in the early stages of the experiments to understand what causes my disorder. Necessary body functions such as swallowing are difficult. My gastroenterologist prescribed corticosteroids and another drug for reducing acidity. I also decided that it was time to be consulted with someone to integrally evaluate my body, and I found a general practitioner who specialized in functional medicine. I don’t want to take steroids because they cause collateral effects such as arthritis symptoms. When I don’t do a dose, my neck swells, the enthusiasm that I often increase and give me fever. He feels like an experiment and that doesn’t like me.

Our body is healing. But at the moment something hinders this process for me. At the moment I follow the signs that my gastroenterologist suggested and try to make my body healthier so that the EEE can fight. I know that I have to control the disturbance for the rest of my life, but I am determined to be in a situation in which the disease does not cause such serious symptoms.

I train more, meditate twice a day and work in my breathing. I pay great attention to my diet, just eat unexpectedly comprehensive foods and eliminate some foods that are known to cause inflammation and allergies. I have already identified some foods that make my symptoms worse. In a way, this was a good alarm sign for me. It is difficult to eat outside of my house or go to restaurants and find something that my EEO does not trigger. Who would say that there is almost all of the tomato?

What I learned during this process is that if your body shows something, draws attention and finds someone, spend time and believe them. I think that medical providers often ignore women and tell us that we imagine our medical problems. It is very important to find people who take care of them and really devote themselves to the examination of the examination of what is happening to our body to determine what we can do about it.

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This educational resource was created with the support of Sanofi and Regeneron.

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