Conversation Guide: Questions About Alzheimer’s Disease

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Even if you suspect you have Alzheimer’s, it can be difficult to hear the diagnosis. However, you can still control certain aspects of your attention by knowing as much as possible. This means you need to ask even more questions, including:

  • Who will treat me?
  • What changes could you expect in the future?
  • Are there treatments that could slow the progression of the disease?
  • Am I entitled to treatments?
  • Is there treatment for my symptoms?
  • Are there clinical trials I could take part in?
  • Should I make lifestyle changes such as diet and exercise that will promote my overall health and may also help slow disease progression?
  • What resources are available to me and the people who care for me?
  • Which decisions should I make now, such as a living will or a health care power of attorney?
  • Can I continue driving safely?
  • What type of support may I need if I want to continue living in my home?
  • What are the next steps I should take?

Some people may find it difficult to receive dementia care due to cost, insurance status, language barriers, and geographic location. If you encounter obstacles, ask your doctor if there are support systems for you, such as: E.g. low-cost services, transportation options, interpreting services or local assistance programs.

If you live alone and don’t have family or friends who can care for you, it’s especially important to ask what types of resources are available and how you can access them. This could initially include a social worker or a health coordinator.

You may be eligible for community services, such as those found at Eldercare Locator, part of the HHS Administration for Community Living. [Departamento de Salud y Servicios Humanos]. The Alzheimer’s Association’s 24-hour hotline (1-800-272-3900) may also be helpful.

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